Reply To: CIDP Diagnosis

January 17, 2024 at 6:27 pm

Hi Tim!

I don’t have any treatment advice for you, but I do want to share you are not alone. I was diagnosed with Miller Fisher in April 2022, and it has been a battle trying to get decent treatment/help. I am 25yrs old, so a lot of doctors that have seen me dismiss me into needing any extensive treatment because of my age. I have been in a wheelchair since but I pray to God that something comes along the way. I have sensation everywhere and luckily there was no nerve damage and I have pushed myself to walk with a walker at most 30ft which has been good! My spinal tap/CSF did show the bands as well which is why they diagnosed me. I hope you get the treatment and answers you deserve before it gets worse as it has been for me!