Reply To: Newly diagnosed with CIDP

May 30, 2023 at 11:08 pm

Welcome. Sorry, you are dealing with this.  While I am not a doctor, I have CIDP and was pretty certain you needed an elevated protein in your spinal fluid to be considered CIDP.  Not to say, that whatever you have stinks!

I’m hoping people will chime in here.  This forum isn’t the most active but it is a lifeline for hope for people in the dark about what is happening to them.  I would also say, that the intestine issue would seem to not be in conjunction with the neuropathy.  The neuropathy was probably already happening for several months to get you to that point of weakness in November.  Again, just an opinion.

What city are you in?  Maybe someone can give you a good referral.