Reply To: Two flair-ups since October
Thanks for sharing. I hope this gets better for you. I wish this forum was more active. I check it almost every day. I have no experience with IVIG, been just using Cellcept.
I was doing great through last Summer when I dared to reduce my dosage. Doc and I agreed on reducing my daily 2000 mg to 1500. I went to 1000 on my own and about 3 months in I realized 1000 wasn’t enough. Back at 1500 now and doing better but considering going back to 2000 mg. I’ll be monitoring and seeing how it goes.
I was going to get the shingles shot also but when I found out it was a live vaccine, I didn’t get it. I do need a pneumonia shot and will consult my neurologist. For work, I was supposed to get a Yellow Fever shot last year, but luckily they accepted a waiver. That’s another live vaccine.
Feel free to post here, I’m always checking to share conversations, experiences, and knowledge.