Reply To: new member – CIDP/MADSAM/MMN

Hi Terry!

I  wonder if you will see this but I am wondering how you made out?

This is the most similar set of progression and symptoms that are similar to mine.

The first time I noticed something weird was back in Dec 2021 when I noticed myself losing balance when I over reached for something. It was subtle but I did notice it. In Feb 2022 I went for a 5km run (normal for me) and after  it felt like my R knee had no control and it would constantly try to buckle with every step.  It progressed and I had to stop running because as  soon as I started exerting myself, I would start to lose control of my motor functions in my R leg. My R foot would constantly drop and I would trip.

It is Late July and I have stopped working (as a carpenter) because my R leg constantly feels weak and I am unbalanced while I am on it. I am currently waiting for my results from a full Spinal and Head MRI and am undiagnosed but I am fairly convinced I have MMN.

My current symptoms are that my Leg is constantly weak, especially around the knee. Its pretty manageable until I start using it for any extended period of time. If I go for a walk then it quickly loses stability and control to the point where my R leg feels like jello. It does recover with rest. I notice it in my arm once I exert my self, but not nearly as bad as my R leg. My grip strength is good at first but quickly fatigues. I find drinking an electrolyte drink seems to help quite a bit. I have stopped drinking alcohol since I find it makes it worse. There is never any pain, or any sensory sensations like tingling or numbness.

If you get this then I would love to hear from you.

Thanks!

Peter