Reply To: Reaching out for my husband, who has been in the hospital for 5 weeks.
I’m very sorry to hear about your husband’s condition, this is traumatic for you both.
Kaiser is not known for their expertise with GBS/CIDP or variants. A center of Excellence such as Cedars-Sinai in LA (Richard A. Lewis, MD) would probably not be covered under your insurance plan, but would offer the best diagnosis and treatment for your husband. There is also UCLA and UC Irvine.
Plasmapheresis (which in my opinion does little to treat CIDP) is not the same as Plasma Exchange. Please read about the differences here:
https://forum.gbs-cidp.org/forums/topic/please-educate-me-on-plasmapheresis
Rituximab is the treatment that put my GBS/CIDP/MFS into remission. You can read more about it, and possible sources of anemia, in the following forum thread:
https://forum.gbs-cidp.org/forums/topic/anemia-due-to-cidp
Here is a brochure with more comprehensive explanations of GBS/CIDP diagnosis and treatment options. It also goes into bladder and bowel related disorders: