Reply To: CIDP Success
I too was declared in remission, based on no worsening without treatment, in 2016 by Dr. Jeffery Allen, a member of the GBS-CIDP Medical Advisory Board.
Recently I felt weaker and sought out Dr. Allen up in Minnesota. He compared my recent EMG/NCV and Clinical picture to that in 2016 and before.
This sentence from his notes sums it up- “… His condition blurs the clinical distinction between MMN and mCIDP (Lewis Sumner Syndrome), and I think blurs the pathobiology mediating these disorders as well.”
Just restarted IVIG every 3 weeks. Sigh.
Happy New Year, everybody.