Reply To: CIDP Success

January 5, 2022 at 8:57 pm


I too was declared in remission, based on no worsening without treatment, in 2016 by Dr. Jeffery Allen, a member of the GBS-CIDP Medical Advisory Board.

Recently I felt weaker and sought out Dr. Allen up in Minnesota.  He compared my recent EMG/NCV and Clinical picture to that in 2016 and before.

This sentence from his notes sums it up- “… His condition blurs the clinical distinction between MMN and mCIDP (Lewis Sumner Syndrome), and I think blurs the pathobiology mediating these disorders as well.”

Just restarted IVIG every 3 weeks. Sigh.

Happy New Year, everybody.