Reply To: Relapsed-any suggestions

Bryan, you might consider asking your doctor about getting IV Solumedrol prior to your IVIG infusion.  I currently take 1500mg cellcept twice a day, IV solumedrol before my IVIG every 5 weeks.  No side effects from the cellcept.  The solumedrol keeps me awake for hours and hours (even with a sleep aid), but no other side effects like I had with the oral prednisone.  Hoping to push the infusions to 6 weeks by the end of the year.  Have to get labs every 3 months, mine come back with no problem areas.  Also – I have chose not to get the COVID vaccine.  I won’t get a flu or shingles vaccine either.

Best of luck

Kathy