Reply To: 40 days and no response to ivig – can it still work?

September 14, 2021 at 1:54 pm

I started Cellcept a little over 2 years ago and have been fortunate to be doing really well on it.  I was taking 1000 mg 2x a day and last month we now dropped 1 500 mg pill a day.  I’m hopeful that in 6 months I’ll still be in good shape and perhaps reduce further.

I mention this because I think you should research cellcept before going to imuran. My research shows imuran has way more side effects.  I’ve had none on cellcept.


Also, cellcept vs IVIG.  My belief is cellcept will, over time, help retrain your immune system from attacking your nervous system.  The way IVIG is implemented, it doesn’t act the same way and I can’t see how you can get to a state of remission.

I also communicated well with my doctor on dosages, as we increased or decreased appropriately based on my feedback and my own suggestions.  Be vocal as to what you want based on how you feel.