Reply To: Anyone using IVIG longer than 25 years?

September 1, 2021 at 9:03 am

I have been on IVIG every 4-5 weeks since 2011 without any problems. I get 35 grams of Gammunex IV every 5 weeks and don’t need any steroids. So going on 10 years and I am still getting good response from the IVIG. But I cannot stop the infusions without consequences. I tried to push out to 6 weeks between infusions and had symptoms come flooding back. So I know my disease is still active after 10 years – I have not gone into remission. But as long as I am responding to the Gammunex I will stay on it. My functioning is pretty much normal as long as I get my infusions on time. Good luck to you!