Reply To: CIDP and facial/mouth numbness

July 11, 2021 at 5:17 am

Hey Walter,

Your symptoms sound so familiar to me. I don’t have a diagnosis yet, but we suspect CIDP. I also have facial numbness and the burning spine sensation. I have not started any treatments yet because my EMG/NCV is still normal, however I may be starting a round of pulsed dexamethasone soon.

With your symptoms sounding somuch like mine, I’m wondering what you have found to be most helpful?