Reply To: Elevated sedimentation rate

December 7, 2020 at 9:09 pm

Walter, multiple EMGs by three different neurologists have shown severe demyelination of the nerves in both my legs. By the time I was diagnosed with CIDP, I had lost 80% of the nerve function in my legs. There’s no doubt that I have severe neuropathy, and my first neurologist said my very high sed rate reflected that. Now I have a different neurologist who wants to blame everything on my back. Bad discs in my lower back can’t strip the myelin off the nerves in my legs. And if the high sed rate isn’t related to inflammatory neuropathy, what is causing it? He threw out (by email, which is how he’s treating patients during the pandemic) a couple of horrific possibilities, but I don’t have the symptoms of either. Then he more or less shrugged it off and said he doesn’t know, leaving me to wonder what the hell is wrong with me. I’m going to get an appointment with a good rheumatologist who knows inflammatory autoimmune disorders.