Reply To: CIDP and facial/mouth numbness
I have not used Igenex for testing.
The first test was done when I had my first lumbar puncture and came back negative. I had this done right after I was admitted to the hospital and prior to any GBS/CIDP treatment whatsoever. The importance of this is IVIG can & will mess up the results. I had it done again when I was re-admitted due to a relapse a few weeks later. Then again when I had my 2nd relapse and was readmitted, this time to Scripps-Mercy in San Diego. Infectious disease doctor used blood this time. They have what is called a titer(?) blotter or some such. There are 10 blotters and they count how many, if any, come back positive. The tests results were all over the place due to IVIG being administered. The doctors gave me no treatment for Lyme. I take that back, I did receive about a week of I believe: doxycycline VIA oral while in Scripps.