Reply To: CIDP and facial/mouth numbness

December 2, 2020 at 11:52 am

I have a significant amount of facial symptoms. I get various degrees of burning and tingling to the right side of my face. This is involvement of the trigeminal cranial nerve, and was one of my first symptoms. The scig, prednisone and gabapentin have helped but it still is there at times. The sensations are the same that I feel elsewhere so I have no doubt that this is due to the cidp, and my neurologist believes it is cidp related. He has tested me extensively, and mostly everything has come back negative except protein in the csf. I have been tested for lyme multiple times as I live in a tick endemic area and this has come back negative. I have some tingling and burning to the distal third of the tongue but no loss of taste. It makes sense to me as most of the cranial nerves are considered part of the peripheral nervous system and are inflamed.