Reply To: CIP/CIDP symptoms worsening from IVIG

August 18, 2020 at 8:15 am

I started Prednisone a bit over 2 weeks ago with 50mg/day.
After 10 hours I started feeling better than I felt in a long time.
Steady gradual improvements of most of symptom over the following week.
Pain reduced by 50%
Muscle twitching reduced by 50%
Energy level up by 200%
Impairment in movement and loss of sensation (both minor at this stage) almost unchanged.
It feels the inflammation in my spine and whole body has stopped but so far no healing has commenced. Inflammation was my my main complaint every time I went to see a neurologist the last two years but nobody seemed to take me serious enough to prescribe Prednisone.
This highlights what others on this forum already mentioned, it is vital to find a specialist with the right experience.
I shall update when I know more.