Reply To: Anemia Due To CIDP?
Thank you for the many times before you have helped me with information.
My daughter got sick with CIDP, arachnoiditis, and intracranial hypertension/pseudotumor cerebri in 2016. She’s had low RBCs since before her first IVIG treatment and her RBCs have continued to be low after 41 rounds of IVIG. Her hematocrit was borderline before her first round of IVIG but became low and has stayed low. Her hemoglobin has hovered over borderline to low.
Her neurologist has never discussed her “anemia” with me, and honestly, I thought it would correct with IVIG treatment because she had a lot of other blood work that corrected itself once she could eat again. (She had a lot of autonomic dysfunction including gastroparesis with her CIDP)
Her fatigue is still debilitating even though her NCS are much improved, so I’ve been thinking about her anemia.
Her RBCs are 3.92 million/mm3 ref range 4.2-5.5
Her Hct 33.4% ref range 37.0-47.0
Her Hgb 11.5 g/dl ref range 12.0-16.0
What are your thoughts?
Are there some guidelines about when to look at bone marrow for a smoldering cancer?