Reply To: Anemia Due To CIDP?

February 6, 2020 at 11:20 am

I am a 69 year old female diagnosed with CIDP in January 2017. Spent 5 months in hospitals and rehabs due to paralysis from neck down, with limited movement of hands. After Plasma exchange, IVIV, chemotherapy and high dosages of prednisone, by June 2017 I was able to walk and do daily chores. Continued on IVIG regime every 4 weeks. In February 2018, I was diagnosed with aplastic anemia. All blood work totally bottomed out — platelet count got to zero. Yes zero. Needed HLA matched platelets which they could not get in a timely manner in Alexandria, LA so I was transferred to UT Southwestern Hospital in Dallas. After approximately 50 units of red blood and 45-50 of platelets over an 8 month period I was finally transfusion independent as platelets stayed between 40-60 and hgb at 10-12. Stopped IVIG due to reaction. Had 6 months of what I call my new normal and now all blood counts are dropping again and cidp has flared up. See hematologists on January 20 and am unsure what they will suggest. Oh by the way, kidney function fluctuatates between 15-25 and 45.