Reply To: CIDP Diagnosed / Recovered / My Story

February 5, 2020 at 10:48 pm

It’s good to see a somewhat positive story for a change. The stories do vary wildly from what I’ve been reading. It does seem to help greatly to get a proper diagnosis early on before the damage is too far gone.

Currently on 30mg of Prednisone daily, plus 30g x 3 Privigen every 4 weeks. So far after 2 rounds of IVIG, I’ve only noticed minimal improvement but a little is better than none. Ready to start the third round next week. I have been experiencing a lot of fatigue lately though, to the point I sometimes take a couple naps during the day. I’d like to get over it and start working out at least a little to regain some strength.