Reply To: New Diagnosed-IVIG question

December 28, 2019 at 8:15 am

Great feedback all to my queries so thank you for that.

I have now spoken to a second Neurologist yesterday who agreed that going to Prednisone with some type of immunosuppressant etc. was the next option. He said that in his experience, about 60% of patients will see a benefit form getting the IVIG on its own and those that do not, often benefit by receiving another high does of IVIG (like another loading does). His comment was that these are the less invasive options and that if that did not work,they then move onto the other options of steroids and immunosuppressants. They want to get me in starting within the next week to receive the next 5 day dose of Gamunex. (2mg/kg or in my case about 155 mg over 5 days.)

I am also on 600mg of Gabapentine now and was advised to increase this to 900mg/ day.