Reply To: New Diagnosed-IVIG question

December 27, 2019 at 8:19 am

Given all the input from my original post, I am curious as to how many people are actually on Prednisone or some other steroid in addition to the IVIG? I spoke recently to my Neurologist and she said “we don’t want to be using Prednisone to treat CIDP” which seems to contradict much of what I am hearing from others?

My current concern is also that after almost 4 weeks since my Gamunex loading does, I am continuing to deteriorate in terms of numbness and pain in feet and walking is getting difficult. Ha anyone else had this experience and if so what were the next steps you took?