Reply To: Remission and IVIG

December 23, 2019 at 11:00 am

I was diagnosed with CIDP in 2008 and started IVIG treatment shortly afterwards. For the last couple of years I’ve been gettin 100g every 2 weeks and every other 2 weeks I get it twice. For most of this year I have seen very little difference after the infusion. Other individuals getting infusion at the same center have said the same.

Recently I was seen by a noted neurologist and after an examination, etc., he asked me “How do you feel after an infusion?” I replied “ Better.” To which he then said, “No, what I mean, is what are you able to do afterwards that you could not do before?” My response was “I feel better.”

That makes me wonder what other people are able to do after an infusion that they could not do before?

After 10 years of infusions, I stopped having them. It’s been nearly 5 weeks since my last one – not very long and I’m still trying to determine if there is a difference.