Reply To: New Diagnosed-IVIG question

December 16, 2019 at 7:59 am

Good feedback for me as I was also unaware of the wide use of Prednisone and Cellcept. I am also only on the Gamunex IVIG at this point although am meeting with my Doctor in two weeks to discuss next steps.I am using gabapentin as well although not sure it is helping at all for nerve pain.
I like facts and as you said want to educate myself but there seem to be so many variables it is a challenge at this point. My numbness in my toes and feet is getting worse by the day and the lightening storm in my legs at night makes sleep very difficult.
I actually am supposed to get on a plane on Thursday to the Caribbean for a first ever long planned Christmas vacation with my kids and am seriously wondering if I can do it now. Doctors say to go and rest up but at this rate not sure how bad it might get in the next 10 days. (Sorry just venting now…)
Will speak to Doctor today and hopefully get something else to help with symptoms but not sure if that is realistic thinking at this point.