Reply To: New Diagnosed-IVIG question

December 15, 2019 at 9:06 am

Hey Rob,
Make sure you drink a lot of water during & after infusions, this is important. If you don’t, you get headaches.
My infusions made me anemic, I take iron vitamins just before, during infusions.
My doctor never warned me about anemia, had to suffer through the fatigue until I talked to a friend, his wife took iron for thyroid issues, she was anemic. 👍
You will find out more in in here than from the doctors.
Keep your hopes up, I’ve been fighting with CIDP for 2 years and haven’t seen remission. Everyone is different though, if you don’t see improvement in a few months ask the doc for other options. Time is not on your side, do your research. The longer it goes the more damage occurs. There should be a plan B in mind if the infusions don’t work. I’m not trying to sound negative, hope for the best, plan for the worst.
Good luck 🍀