Reply To: numbness -> second round of IVIG?

November 28, 2019 at 12:07 pm

Happy Thanksgiving everyone!
Coming up on my 3rd year anniversary of being diagnosed with CIDP. 🎂
I just finished my 2nd infusion in my 3rd regiment of Gamunex. I receive two days of infusion a month.
The 1st infusion gave me a week or two of some improvement & relief.
The week before my second infusion my health declined, I couldn’t wait for the next.
Except for a few days of relief here and there, in general I’m experiencing a rapid decline in health and mobility. Over the last year or so, I’ve lost 40 pounds. I’ve gone from a relatively healthy, 61 year old 210lb working ironworker to a 170 lb. cripple. No matter how much I eat, my appetite is good, I’m hungry, I eat good meals. I can’t keep the weight on.
I have found a podiatrist who I receive therapy from, who has a method of restoring nerve damage.
If you live in Connecticut.
West Haven Foot & Ankle.
I absolutely recommend them.
I was skeptical at first, but I see positive results.

I hoping to see some improvement with my mobility, my neurologist has doubled my Gamunex dosage, Maybe I’ll see some improvement this month. 🤞