Reply To: IVIG Shortage

October 1, 2019 at 8:18 pm

I too have been waiting for IVIG due to the shortage. I’ve been on Prednisone for about 3 months now since being diagnosed. The only problem with it so far is it jacking up blood sugar for several hours after taking it. Originally with highs around 250-260 but now seeing some over 300. I have much less pain. My energy not only returned but then had too much and became restless. My weight started going back up after going from a healthy 180 to 145 lbs.

I was on 60mg but recently lowered to 40mg and seem to be slowly relapsing now.

I do have concerns about steroids because of the long term damage they cause so am willing to give IVIG a try.