Reply To: Newly diagnosed GBS and terrified
I hope it’s safe to assume you were taken off the drug that caused your GBS. I believe Kenneth Gorson MD , an expert in GBS/CIDP practices in Boston. If steroids are not working to relieve your GBS symptoms perhaps IVIG or plasmapheresis is in order. Obviously yours is a complex case and you need your oncologist to consult with an expert in GBS to plan your therapy. I’m sorry I cannot be of more help to you but I think you might be lucky to be living in Boston where I believe there are experts in GBS.
Best wishes for your recovery,