Reply To: IVIG made me worse.
Hey Jon, I feel your frustration. I had 20 IVIG treatments since January 2019. Just found out my kidney function is now a few points above failing. Four days a week each month with a month off in May. Urine tests with the start of each session and nothing ever said about failing kidney. Dr said I should listen to my Neurologist and have IVIG again if they think it would help my GBS. No way will I ever go thru that again. I believe it helped the first few treatments, but the rest were a waste of time and money. Thank God my medical insurance paid the super expensive cost. I’m doing PT twice a week with very slow progress. Dealing with GBS for 18 months and in a wheelchair all that time.