Reply To: Cut off further treatment
July 9, 2019 at 8:09 pm
I’m in St Catharines, Ontario. It’s in the Niagara peninsula. Our population is 450,000, so we should have 16 folks with CIPD.
Unfortunately in Canada we have privacy laws, I have no idea who the other 15 are, and no way to find out.
This is a very lonely thing to go through! The docs and nurses are restricted by the privacy rules as well.
We have a GBS/CIDP foundation East of Toronto who hold seminars from time to time, I attended one but didn’t learn much or meet any from Niagara.
Hopefully, when I see the new doc he’ll put me on SCIG