Reply To: Time of decline

June 22, 2019 at 12:29 am

Walter, thanks for sharing. Did you have aspinal tap done to check for elevated protein levels? I’m no expert, just a patient but with all the IVIG you’ve had and no success it doesn’t seem like you are diagnosed correctly to me. When I look at all the typical symptoms and test result I have, I clearly have CIDP. With what you are reporting it doesn’t seem to be the same at all. No Prednisone yet???? Best of luck in getting better asap!