Reply To: Time of decline

June 14, 2019 at 7:08 pm

I’ve been at this for 2 years now.

I’ve been on Prednisone for 2 years. Most of last summer, I was taking 60mg as my CIDP symptoms were acting up. Right now I’m down to 17.5mg.

The bad thing about Prednisone is that it can weaken your bones. As a result, two of my vertebrae were found to be fractured and that has caused me a great amount of pain over the last month.

I’m temporarily receiving IVIg weekly (to see if the nerve pain/numbness and weakness in my arms, hands, calfs, and feet could be dialed down) and I started Imuran in May.

The good news is that I think the Imuran is actually working. The numbness in my fingers and forearms has receded and the weakness and numbness in my calfs seems to be gone, leaving the neuropathy only in ankles and feet. Additionally, I don’t feel as tired and exhausted and actually have a bit of energy.

So once my vertebrae heal, I actually think I’ll be on the upswing. That last year has been painful and a challenge and I truly hope the Imuran continues to make me feel better.