Reply To: The ups and downs of this disease

April 17, 2019 at 12:45 pm

Kathy, Kevin and Jacqueline,

You descriptions fit me perfectly. Right now I get the glove and sock effect off and on. Some days I feel okay and the next day, my legs and hands are numb and I’m weak, including being short of breath. It takes sleeping 12 hours a day for several nights to rebound and get my strength back.

I’m taking IVIg weekly now, with 20mg of prednisone daily. I’m interested in Cell Cept. What side effects does it have?

Thanks to everyone for responding.