Reply To: Bad "Flare Ups"/Residuals

March 26, 2019 at 5:42 am


I hope that you are feeling better. I was diagnosed with GBS in March of 2013 diagnosed with lumbar puncture and EMG. I was treated with IVig and released from the hospital.

A few months later I started experiencing a return of symptoms. My doctor at the time didn’t listen to me and dismissed my renewed symptoms as not that serious. I waited a little longer and then decided to go over the doctor’s head.

Within hours of a new EMG, I was back in the hospital undergoing another round of IVig. I have since been diagnosed with CIDP and have had one more flare up.

This is not meant to scare you or imply that you have CIDP. You and only you know what your body is trying to tell you. You need to be your own advocate. If you are experiencing a renewal of symptoms so strong that you need to return to a wheelchair you probably need to push your doctor for another EMG test.