Reply To: Newly diagnosed- Ivig expectations?

March 4, 2019 at 6:46 pm

I’m 7 months since being diagnosed. I just finished 2 and a half months in sheperd center rehab and am now home. My main problem is feet and legs. IVIG did not stop the progression and had multiple plasma exchanges. I was on a ventilator for some time and feel pretty good about being able to do hat I can. I can tend to my personal needs but walking is tough. Staying positive is the only thing we can control and doing the most with what we have and what we get back. I hope you progress quickly since yours did not involve your whole body like mine. Like you I was completely healthy at the onset. Good luck!