Reply To: Newly diagnosed- Ivig expectations?
PT is going ok but i totally feel your frustrations. I’ve been doing PT about 2-3 hours a day 3 times a week and also turned a spare room into a gym for my home exercise program. I still have lots of issues with weakness and balance so my therapists have been pretty creative to help get me not get bored with my exercises. I’ve installed a ballet barre and TRX rings- both are great at giving me stability as I try to increase my strength and endurance but it’s sloooooowww going. Maybe try switching up your routine?
I’ve also been getting ongoing IVIG treatments every 3 weeks and the week after seems to be a “good” time for me to make some gains since I have less pain & numbness then