Reply To: Newly diagnosed- Ivig expectations?

February 9, 2019 at 8:49 pm

Paul, Thanks for sharing….I too was diagnosed in fall of 2017. I have not had ongoing IVIG treatment. I have tingling and numbness 24/7 that increases with physical activity. It sucks!! I was also told it would go away by now, but it hasn’t. My Neuro Dr keeps trying to give me different drugs to see if it will help but nothing did and I am tired of being a test subject so I just say no these days. Yes, it is a terrible disease that Dr’s know little about (in my experience). Hang in there friend and know you are not alone.