Reply To: Anyone with Sensory Predominant CIDP?

January 26, 2019 at 6:26 am

Hi there- I just joined this forum and saw your questions. You and I have the exact same CIDP…sensory. It started in 2003 with numb big toes. Finally in 2007 was told that I had MS. Went with that till 2012, when I couldn’t lift my legs to drive a car. Mayo, Jacksonville finally correctly diagnosed after many tests including spinal tap and EMG.. I use hand controls to drive, eat and exercise (pool) the best I can and 3 ½ years ago get IVIG every 4 weeks. (2 consecutive days). Pain is more like random shooting pain. extreme exhaustion in legs, and little sensation in hands. So far, it is all that is being recommended by my Neurologist who is head of Clinical Trial/Research center. I pray someday they will come up with a cure/remission for me. Staying positive and living with my “new normal” life has daily challenges. I have good support and care from my partner. He helps me continually. I would like to hear how you are doing since your post!