Reply To: Long Term Mild GBS

January 14, 2019 at 9:56 pm

GBS is almost always a single event and does not return after its normal 4-6 week run. The recurrent form (RGBS) is very rare (1-3% incidence rate) but is not known to last much more than a year. If your condition has seen flare-ups after a year or more from onset of GBS, most Doctors would diagnose the condition as CIDP, or possibly one of its variants (AMAN, MMN, etc.).

I was stricken by GBS/CIDP/MFS in 2008. It left me with permanent nerve damage and I’m still wheelchair-bound today. The long-term prognosis for CIDP patients can vary greatly and is summarized in the following study: