Reply To: Still have leg pain

January 1, 2019 at 9:54 am

Regaining muscle strength is a long term proposition. I’ve had this disease for two years now, and my physical strength is still far short of normal and my endurance is limited.

Because this disease attacks the nerves, signals to the muscles are interrupted and they atrophy. Some folks fully recover, some are severally afflicted, and some of us are chronically affected.

My guess is that because my CIDP acts up on a regular basis, my nerves will never fully heal correctly and I’ll have to settle for being 85-90% of pre-CIDP self in terms of strength and so on….

Oh, and GAMAGARD. I usually get Privigen, but during one infusion session, they were out and substituted GAMAGARD. It made me sick for an entire week. I could barely walk for 3 days, lost a great amount of strength. Never will take that stuff again.