Reply To: CIDP – Standard Treatments Not Working – Anyone else?
This is quite a thread! I’ve had both CIDP & Vasculitis.
Most of the drugs mentioned above have been used, including Rituximab.I now have a relapse of what appears to be severe, rapid onset of CIDP. I had my last Rituximab treatment in January – although I’ve been readvised that this is supposed to be repeated every 4 months. Last known CIDP was in 1998 treated with IVIG (although it could have easily been missed in a confusion of care received in both Los Angeles and Tennessee. Before Rituxan I was treated with Cytoxan, Cellcept, Prednisone, etc.
Good luck to all of you dealing with this condition. It is highly variable and affects so many of us differently with varying confusing presentations.
I would write much more but my hands aren’t working properly and typing is exceedingly difficult.