Reply To: Mysterious Disease

November 6, 2018 at 3:20 pm

I too am officially “undiagnosed” although I had CIDP previously and was treated successfully with IVIG in Los Angeles area. Now am in Nashville TN & am very sick with full on CIDP symptoms. Symmetrical numbness, weakness, electric shocks, burning in stocking glove pattern in lower & upper limbs, with ascension of symptoms into my legs, hips, shoulder girdle, neck, face, haven’t slept in 4 nights, in bed 24/7 – other disabling symptoms.

My PA at Vanderbilt accessed me with CIDP however the “senior” team of Neurology at Vanderbilt has written me off for treatment, saying if I rapidly became worse (which has happened) I should enter VUMC ER & they would “figure this out”. Of course I won’t accept this & won’t admit myself as an inpatient.

I am now pursuing assessment by other Neurologists.