Reply To: Fibromyalgia, CIDP, MS, or who knows what

October 4, 2018 at 2:02 pm

So, after seeing the neurologist and going through another battery of blood work, I was diagnosed with Idiopathic Progressive Polyneuropathy.

After seeing that neurologist, I had an appointment with a rheumatologist, which is a specialist type I had never visited. She says, that I have all the markers for a fibromyalgia diagnosis. I did a pressure point test, etcetera, and scored on the high side. However, because I have the neuropathy, she tells me that it’s hard to see where the neuropathy ends and the fibromyalgia begins. She recommends exercise, and some other stress relieving measures.

I’m already on gabapentin and Flexeril, so I am pretty much taking everything I possibly can. I supplement with CBD oil, which does help in addition, but at this juncture it seems I am where I’m going to be.

The pain I am left with, after all the medicine I take, is still very debilitating. And any activity I partake in, makes it worse. However, sitting still too much, makes me stiff and makes me hurt as well. The whole situation is pretty depressing, and is compounded by the struggles I am facing with getting Social Security disability and winning my long term disability insurance case, which are both taking forever. So, my wife and I are pretty broke on top of everything. However, I do my best to keep a positive attitude, and always tell myself and others who asked, that it could always be worse.

My rheumatologist tells me, that if I can get to a Mayo Clinic, perhaps I can get more definitive answers on what is causing all this. But, I live in Tennessee and because of my financial situation, getting to one of these Mayo Clinic locations is going to be quite the challenge. On top of this, the cold makes me hurt even worse, and makes it nearly impossible to function. So, I’m going to try different Avenues to see if we can get help moving to Florida, somehow. We’ll see how that goes and just take it one day at a time.