Reply To: Relapse

September 11, 2018 at 12:46 pm

My 2 PEs to date have been inpatient for 10 days. 5 treatments 1 every other day. About 60% of down days required transfusion due to affected clotting factors.

As I am getting these every few months, did not have a port put in (yet anyway). IR put in a temporary Vascath which they removed on discharge day.

Started at end of IVIG cycle and resumed IVIG soon after discharge