Reply To: Taking Prednisone

July 20, 2018 at 7:14 pm

I was started on Prednisone when I was first diagnosed with CIDP in November of 2016. I took 60mg a day for almost two months, but I kept getting worse and was finally treated with IVig.

I finally switched doctors in May of 2017 and started a course of IVig. I was still on Prednisone and my new neurologist began to wean me off out. It took to March of this year to get finally get off of it.

But, I began to feel worse. I was fatigued, had muscle spasms and cramps everywhere. Every joint in my body ached as well.

It turned out that my adrenal gland was producing natural steroids. That’s direct result of long term steroid use (or maybe my adrenal glands was bad to start with?). Anyway, I’m back on Prednisone right now and feel decent.

Some people are helped by Prednisone. I hope you are. It certainly is the cheaper route compared to the cost of IVig.