Reply To: Back on the Prednisone-Anyone have this happen?
I just joined the forum. Read a couple of your posts and realized we have at least two things in common…unfortunately one of them is CIDP…the other is Geography. I also live in Greater Cincinnati.
I went to the ER on Thanksgiving Night of 2017 was admitted… and after about 5 days was diagnosed with GBS. I was given 5 days of IVg. I spent 4 weeks in rehab having lost the ability to walk. I have been rehabbing since. Made an appointment with Dr Stino at Ohio State Wexner Center in January…couldn’t get in till April. He changed my diagnosis to CIDP and I am starting a regimen of IVIg tomorrow…weekly for 6 weeks then every 2 weeks for 8 weeks and then once a month for 2 months.
I wasn’t ever treated with steroids other than when they thought it was my back and I was given an epidural in my lower back. I’m not sure what to expect from the IVIg but hopefully it will help.
I am still having trouble walking…I use a walker when out and a cane in familiar flat places. Joined a gym and go about 3 times a week mostly I use the pool to walk, exercise, and swim… but also work with a personal trainer once a week.
I’m coming up on 6 months since original diagnosis and was hoping to being further along in recovery, but as long as it stays on the upswing I won’t complain.
Good luck with your recovery.