Reply To: Cedars~Sinai Dr. Lewis

May 7, 2018 at 2:52 pm

Oh I’m sorry I confused Cedars Sinai with Mount Sinai

I have not heard of Northera as a treatment for autonomic CIDP but I have heard of it being used in cases of pure autonomic failure

So it seems like you are on the right track with pursuing the autonomic testing…and you need a referral to a place where the testing is already up and running.

You might have better luck finding an autonomic testing clinic near you on a dysautonomia website.

Maybe your original Neuro who referred you to the neuromuscular neuro would refer you to the up and running testing facility when you tell him how many times your appointment has been put off.