Reply To: GBS – Original event plus four relapses

Did the plasma exchange seem to work better than the IvIg? Stick with what works best. When IvIg seemed to be ineffective for me, I was switched to PE and never took IvIg again. Five days of steroids is nothing. When I started recovering after PE, I was given prednisone with dosage gradually reduced over the course of a year. At the same time, I took mycophenolate mofetil which I continued for about three years.

After a serious case of this, it would not be unusual to have permanent residuals, especially in the feet. The thing is to try to stop the active phase. If that can be done, maximum recovery will take about three years, and it likely will not be 100%. We just take it one day at a time and try to do the best we can in our new circumstances.