Reply To: Residuals? 21 years later?

April 8, 2018 at 12:40 pm

Thanks for keeping us posted on your latest developments. So sorry to hear about your condition at 29 years old. When I read about your status, I feel very fortunate that I was able to recover from GBS (complete paralysis) with only foot drop in both feet. I hope you will get better over time with the PT and crutches.

I also want to thank you for providing those links at the bottom of your note. With some searching, I was able to find a book that is available on the web (free for downloading) celebrating 100 years of progress on GBS:
http://eprints.gla.ac.uk/136380/1/136380.pdf – lots of interesting & useful information – especially for someone like me who got GBS in 1972!

And on a similar note, there are Youtube stories of people who have had GBS recently. What is interesting for me is that we had no cameras documenting my GBS. But now with cell phones, family members can document the entire GBS story. Of course, these are selective samples – not representative of the GBS population. Nevertheless, I was able to “relive” my story through other people’s stories and actually see what was done to me (e.g., tracheotomy) through this “new” technology. I have only looked at a few – here is one story: https://www.youtube.com/watch?v=VWvrHhs2jps

Let’s hope for a good year for you.