Reply To: Urine Retention – Acute pandysautonomia

April 2, 2018 at 2:14 am

I wrote to the forum about 1 year ago as my son was 7 years old at that time and was diagnosed with Acute pandysautonomia on Feb 21, 2017 with symptoms of urinary retention, blurred vision with enlarged pupillary, gastrointestinal problems, and weakness. He has recovered well. The only remaining issue is the urinary retention problem. He has been using intermittent self-catheterization 3 to 4 times a day to help empty his bladder since June 2017. His condition has improved to the point that the remaining urine from each catheterization was about 40 cc (from greater than 100 cc originally). I am wondering if anyone knows of the criteria or knows where I can find information when we can stop the intermittent self-catheterization for him. He is 8.5 years old now. Thank you in advance for your help.