Reply To: Your recovery, how's it going?

March 12, 2018 at 2:28 pm

Although I am getting better (my nerve conduction studies are now within ‘normal range’) it’s frustrating that a cluster of very unpleasant symptoms persist. I have CISP and am in a lot of pain much of the time in my feet and my head. In cases where there is improvement and treatment assists, I think it’s difficult to get chaemotherapy trestment which could push it into remission. Does anyone have any experience of this type of treatment for CIDP/CIDP? I have been receiving conventional treatment since December 2016 (I have had IVIg, been on steroids and now have regular PE). The tiredness is also a feature and I need much more rest now. I just don’t have the stamina. There are days when I get home from work as well as other times and have to go straight to bed so it still very much affects my quality of life