Reply To: CIPD

March 1, 2018 at 11:12 am

Sorry, I realized I posted the definition of IVIG here in this post when the inquiry on what IVIG is was asked in another post. I apologize for any confusion.

I have a similar situation to GH in that my case is “atypical”. But I have a constellation of symptoms that are not explained by anything else, I respond positively to IVIG and my symptoms often increase before the next dose. So whatever we call it, IVIG works.

I understand that these diseases and all of the variants are likely a spectrum and not one distinct disease. My opinion is that additional variants will continue to be defined over time and many of us “atypical” folks may find a variant home.

I also agree that the quality of discussions on this forum are substantive and informative. There are a couple of great members (GH, JK) that know their stuff and do a lot of research. The facebook forums do have a social aspect, but there are knowledgeable people on there too and a lot of useful information is shared.