Reply To: Miller Fisher – Double Vision worsening!
That’s so true how you say “accept and work around.” It’s been a new “normal” ever since, but not exactly a bad thing. More like a shift in life and lifestyle really, something which works out with time. When I finally embraced the changes, I found peace. I’m glad to hear you avoided the paralysis like so many experience with Miller Fisher. It’s a reminder to me, daily, of just how frail I can be and how I lean into Grace moment by moment for stamina and strength, even after 17 years post GBS! The experience definitely resulted in a slower pace of things overall, but my days are filled with what I am able to do with my limitations and I’m good with it. The pain behind the eye… oh, yes, remember that well. Sharp, piercing, same place each time. My neurologist said that it’s a good thing, the body making attempt to repair that damaged mylen. I say have hope for your future… you’ll live to tell a great story and give strength to those newly challenged.